Jacob's Cure - A Fight Against Canavan Disease

(I-Newswire) June 30, 2010 - Jacob’s Cure is a non-profit organization who is dedicated to finding a treatment and ultimately a cure for the rare Canavan disease. Canavan disease is a fatal genetic neurological disorder that affects children at birth, one where the child becomes trapped inside their own bodies. Since its inception in September 2000, Jacob’s Cure allocates monies raised to research in gene-therapy, stem cell transplantation, pharmacological approaches and basic science in understanding Canavan disease. Their efforts to date have resulted in successful gene-therapy trials and pharmaceutical interventions that have, in most cases, stopped the progression of this quickly deteriorating disorder in children afflicted with Canavan disease worldwide.In addition, Jacob’s Cure is responsible for creating/funding the Canavan Research lab at UMDNJ/SOM at the direction of Dr. Paola Leone. The efforts at the CR lab focus solely on research and intervention that will save the children dying of Canavan today

With great achievements, not only have the lives of Canavan children been lengthened, but also simultaneously, quality of life has been enhanced. Equally important is the application of research findings to more common brain disorders like Parkinson’s, MS and ALS. The momentum of research is quickly moving ahead towards a cure, but costs have vastly increased because of staffing requirements, materials, equipment and clinical costs. Estimated budgetary cost for the next three years is a staggering 7 million dollars, a task too large for the parents of dying children who must also care for and manage the day-to-day therapeutic, educational and medical needs of typical Canavan children.

Jacob’s Cure is participating in the Chase Community Giving, which is backed by JP Morgan Chase. Chase Community Giving supports local charities and their efforts. The program is giving away $5 million to the 200 charities that receive the most votes from the Chase Community Giving contest. This is an amazing opportunity for Jacob’s Cure to receive funding to continue their search for a cure for Canavan disease. Voting is easy, and takes only a few seconds, just click on this link, http://apps.facebook.com/chasecommunitygiving/, and vote for Jacob’s Cure as the charity you support. In just a few seconds you could make a difference in a child’s future. Please show your support for this wonderful cause and vote. But do not stop there, encourage your friends and family to participate as well. This is your chance to create positive change in the world.

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