(2008-05-12) Check The Gate Productions
MPS VI is not a joke. It is a devastating genetic disease affecting 1 in 300,000 live births in America. Shafon Faith Seeden is one of them…an 18 year old girl who wasn’t suppose to live this long but who continues to triumph over seemingly unbeatable obstacles. The Seeden family is very secure in their faith in God, and each day the hope of Shafon living a regular life becomes more of a reality…or does it? Shafon: An MPS VI Story is a documentary that explores the many trials that one young lady must face each day. What we take for granted, she looks at with wonder.
Kathryn Melton – Executive Producer
Joseph May - Director
Business Number 818-903-4035
Home Phone 818-933-3144
Fax Number 323-375-0379
Service Number 323-960-1668
Web site www.checkthegateprod.com
Email address checkthegateprod@aol.com
SHAFON: AN MPS VI STORY
Los Angeles, California
May 12, 2008
Something is killing our kids and it’s not human.
Shafon has a rare genetic disorder called mucopolysaccharidosis type six (MPS VI). Also known as Maroteaux-Lamy Syndrome, the disease is widely variable, but can affect virtually every body system.
Shafon stands about three feet tall and weights about 40 pounds. She has severe hearing and vision impairment and has lost the use of her voice because she must breathe through a tracheostomy tube placed in her throat.
Shafon just celebrated her 18th birthday. She wasn’t supposed to live past ten years of age so everyday is a blessing. What also makes Shafon special is that she attends public school, and works two part time jobs. This documentary explores the life and trials of this extraordinary young woman, while examining the mystery of her illness. And although her life would never be as fulfilling as we interpret our lives to be, she represents hope and a never ending search for love and happiness in a body not of her own choosing.
The Package includes:
-- Event footage and Soundbites
-- Deleted Scenes
-- Trailer
###
For more information:
Kathryn Melton and Joseph May @ Check The Gate Productions (323) 960-1668
15831 Olden Street Ste 67
Sylmar, CA 91342
www.checkthegateprod.com checkthegateprod@aol.com